Analysis of Perceived Benefits and Potential Harms of Direct-to-Consumer Genetic Testing with Regard to Improving Regulation

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dc.contributor.advisorStahl, Devan
dc.contributor.authorAskren, Juliana
dc.contributor.departmentMathematics.en_US
dc.contributor.otherBaylor University.en_US
dc.date.accessioned2022-05-18T20:00:42Z
dc.date.available2022-05-18T20:00:42Z
dc.date.copyright2022
dc.date.issued2022-05-18
dc.description.abstractDirect-to-Consumer (DTC) genetic testing has been historically under-regulated. Since the development of DTC genetic testing in 2002, regulations have been slowly accumulating with the creation of legislation such as the Genetic Nondiscrimination Act of 2008 and the FDA’s 2010 decision to deem DTC genetic tests as medical devices requiring FDA approval and regulation. There are still gaps left by current regulations that must be filled through improving upon current regulations and establishing new legislation. When considering the need for improved regulations, it is important to recognize the reason consumers pursue such testing. Understanding consumer motivations helps to create regulation that avoids impeding benefits received from testing and ensures consumer protection by mitigating potential harm and risks from DTC genetic testing. This thesis provides a history of DTC genetic testing and analyzes consumer motivations, risks, and benefits to be taken into consideration for future regulations.en_US
dc.identifier.urihttps://hdl.handle.net/2104/11801
dc.language.isoen_USen_US
dc.rightsBaylor University projects are protected by copyright. They may be viewed from this source for any purpose, but reproduction or distribution in any format is prohibited without written permission. Contact libraryquestions@baylor.edu for inquiries about permission.en_US
dc.rights.accessrightsWorldwide accessen_US
dc.subjectGenetics.en_US
dc.subjectBiology.en_US
dc.subjectBioethics.en_US
dc.subjectRegulations.en_US
dc.subjectPublic health.en_US
dc.subjectPolicy.en_US
dc.subjectGenetic testing.en_US
dc.titleAnalysis of Perceived Benefits and Potential Harms of Direct-to-Consumer Genetic Testing with Regard to Improving Regulationen_US
dc.typeThesisen_US

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